HomeArticlesDealing With Chronic Pain Dealing With Chronic Pain By Joseph Donaldson October 20, 2019 Articles, Blog 65 Comments Tags:#deaftalent, being deaf, chronic pain, deaf, deaf awareness, deaf community, deaf culture, deaf girl, deaf people, deaf talent, deaf vloggers, deaf vlogs, deaf youtubers, disability, hard of hearing, rikki poynter, rikki poynter deaf awareness, shit hearing people say, TMJ, what it's like to be deaf, yt:cc=on Related Posts Why do ears pop? I tried the Wim Hof Breathing & Cold Therapy Method for 7 Days | Sorelle Amore FORM SF 2014: Fireside Chat (Full Video) About Author admin 65 Comments Arsey July 3, 2017 well aren't i early too bad im too stupid to come up with a good comment Reply z vign July 3, 2017 YouTube says there are 3 comments, but only shows 2?! Reply Arsey July 3, 2017 I also have bad posture, my spine has deformed because of it it sucks Reply Arsey July 3, 2017 im 7 minutes into the vidieo and i cant believe i just noticed that adorable pin Reply Rochelle July 3, 2017 Flare ups are the WORST!! Reply KateyCat July 3, 2017 I've been dealing with back pain and hip pain, as well as a malformed jaw. Although it's not TMJ it's still a pain and gives me very frustrating migraines. I'm currently in the waiting period limbo between doctors to decide on surgeries for both my hip and my jaw and to determine if I have AS. Yay us….:/ I too think I would pick the hip pain over the headaches Reply Cayleigh July 3, 2017 Ugh, pain sucks big time. Sorry you have to experience it too. My pain alternates all over, but my shoulders (and neck) get most of it. Its basically hell. Reply Eduardo Padilla July 3, 2017 being so young and with that lot of pains in your body?! Reply Elizabeth M July 3, 2017 My back and shoulders hurt a lot especially at the end of the day. I have a muscle disorder that makes everything my muscles do harder, so sitting or standing up all day is really hard and painful. My alternative is slouching, which also causes back pain so… I'm stuck Reply Verpackun July 3, 2017 i'm 15 and got diagnosed with fibromyalgia a few months ago, it's always inspiring to see that there is successful people who have some of the same issues as me ! thank you ! Reply Cursi July 3, 2017 God Bless you Rikki. am sorry you go through all this. chronic pain sucks, I suffer as well so I feel for you. Reply Sophie Mattes July 3, 2017 I have tmj too. Along with EDS, gastroparesis (paralyzed stomach) and orthostatic intolerance and hearing loss etc etc but those are the main so have ketamine injections every other week for pain. So I feel you there. Would love to chat x Reply Dolleyes92 July 3, 2017 I have eds and part of it is tmj for me. I understand your pain Rikki. Reply physx nathan July 3, 2017 can I make a rikki poynter discord server? will $2 help the pain? you told me it would make you smile but I don't know if it will help pain Reply Dylan Bystedt July 3, 2017 Is this Rikki Poynter or Philip Defranco? (That thumbnail pose… 😂) Reply Sophie Mattes July 3, 2017 Does your jaw ever click and gross people out? It hurts but it's quite funny 😂😂 Reply Kahale Ishikawa July 3, 2017 I've had a head ache/neck pain for about a week now. It comes and goes for about an hour or two once or twice a day. Mahalo for sharing. Aloha. Reply AnimeOtaku2 July 3, 2017 Chronic pain isis, worst kind of isis. Reply Harvey Abel July 3, 2017 At first I thought you were going to be discussing ME!!No, huh? Anyway, I recently had an ultrasoiund and Xraysof my left shoulder because of chronic pain, so wonder'what my doctor will have to report to me.Sorry you have to experience these pains, feel well. Reply Annie Elainey July 3, 2017 TMJ is under chronic pain for sure! Another GIFT I received from EDS, lol. And I love you so much for opening up about this!! ❤❤❤❤ Reply Stephanie Stamp July 3, 2017 That TMJ life. I've had TMJ for so long, but thankfully haven't had a locking session in a while. It's frustrating. Reply Jenna July 3, 2017 Ouf chronic pain really is the worst. The only thing that could possibly give it a run for it's money is when people tell you it's not real… Reply starbuxed July 3, 2017 fyi TMJ literally stands for temporomandibular joint. its the joint where your jaw hinges at your skull the term you probably should use is TMD aka temporomandibular disorders. Common symptoms include: *Pain or tenderness in your face, jaw joint area, neck and shoulders, and in or around the ear when you chew, speak, or open your mouth wide*Problems when you try to open your mouth wide*Jaws that get "stuck" or "lock" in the open- or closed-mouth position*Clicking, popping, or grating sounds in the jaw joint when you open or close your mouth or chew. This may or may not be painful.*A tired feeling in your face*Trouble chewing or a sudden uncomfortable bite — as if the upper and lower teeth are not *fitting together properly*Swelling on the side of your face Source I am a rad tech aka xray tech, human anatomy is my passion. Reply tallasianchick July 3, 2017 Team TMJ! I actually am trying to avoid it, but I feel like it's inevitable. Reply Ivy K July 3, 2017 I have fibromyalgia I thought it was normal for people their feet to hurt when they walk to the bus stop. finding out if was not was an eye opener. I can't remember being without pain Reply catiedoesit July 3, 2017 I also have chronic pain. I can't afford massages either, but sadly, I don't have anyone to do it for me. I occasionally use a TENS device, which helps a little. Reply Ari Trahan July 3, 2017 Hey, Rikki! I have chronic pain in both hands, yet due to brain weirdness, signing is easier than speaking for me a lot of the time. Since I can't really do more than see myself sign in the mirror with my wrist braces on (and I already know what I'm trying to say), do you know if the braces would make it significantly more difficult to understand what I'm signing? From my mid-palm up and beyond my wrist, my arm is still fully visible. Reply N A Jay July 3, 2017 I have exactly what you have (chronic back pain, TMJ) and I literally had to stay in bed for 3 days straight only getting up to go use the toilet. It was so bad. And then I was diagnosed with Scoliosis and it was the reason for my back pain, went to Physiotherapy but that didn't work. Right now I'm living with bad back pain and the feeling of a glass shard next to my ear where my TMJ is 🙂 Reply Trekkifulshay July 4, 2017 I have arthritis, scoliosis and fibromyalgia. I got my first migraine when I was 7 and I'm in my 30s now. It's been a long road. I can't remember never not being in pain in the past 20 years it's just rating it on a scale of which part of me is effected and how functional I can be. Reply ᏆᎾᏗᎣᎭ O.o July 4, 2017 I have TMJD as well and while I have a lower back injury my upper back hurts and I was told that TMJD can cause upper back and shoulder pain because of how the muscles connect there. Reply SirChubbyBunny July 4, 2017 I've had some intense back pain for a few months now, and I'm not sure if it's potential nerve pain or it's a fibroma like my doctor suggested. It sucks that nothing helps to take the edge off it, so I'm just stuck with biting my tongue and trying to get by with just ice packs (since not even muscle relaxers help). Reply TheCimbrianBull July 4, 2017 How about getting in touch with massage therapy students and volunteering as a "test subject"? That way you could save money! 🙂 Reply : Earpanddanvers July 4, 2017 I hate hearing that anyone else has suffered through chronic pain growing up. I mean like it sucks a ton that we still have it now but it's extra hard losing those years of your life and that something not many other people can understand. Love from a fellow spoonie! Reply trinthetrex July 4, 2017 Chronic pain sucks. I have it in my feet and legs. It's not fun Reply You've Been Graced July 4, 2017 TMJ is considered chronic pain? I didn't know that and I've been dealing with this for months…My jaw locks up a lot when I yawn and I'm always terrified it's not going to pop/crack back into to place. Great video, Rikki. 🙂 Reply Harper Dailey July 4, 2017 I have TMJ too! Mine isn't as severe, but it does lock up and I can't open my jaw as far as I used to. They believe my TMJ is from fibromyalgia because all of the women in my family have it, but I haven't had an official fibro diagnosis yet because my doctor 'doesn't want to have me deal with a heavy diagnosis at only 16.' But TMJ is painful and horrible and it makes me want to fight my jaw like 24/7. Reply Kal-El July 4, 2017 Cannabis helps Chronic pain 😀 Have a good week. Reply Stacey Cathryn July 4, 2017 I'll get occasional aches and pains, like back pain from sitting at a computer (definitely need to get up more. Ugh). But I don't really have chronic pain. That must suck. A couple weeks ago, my knee made this cracking noise after I bent it. Then it did that a few more times and it hurt all the next day and I was afraid to bend it and walk on it. And sometimes I get chest pain but I went to a doctor a while ago and they said it was the muscle being overworked from stress. That acts up sometimes but not to the point where I'd call it chronic pain. But with the chest thing, I totally thought I might be having a heart attack the first time and that was terrifying, a little like when you looked up your TMJ. Yay! We're both still alive! But yeah, I can't even imagine the pain that you deal with. The work you do probably doesn't help the neck and back stuff. 🙁 Reply Dalila Frias July 4, 2017 I was diagnosed with juvenile arthritis at 14 and now at 24 being told I have rheumatoid arthritis/CRP as well as trying to deal with depression it's so strange to look at pictures when I was younger smiling and being able to use my joints for things that are so difficult now 😔 I feel your pain Reply Paul Pekkarinen July 4, 2017 You should try other kind of therapy if you haven't. Chiropractors are not always the best option, in worst case they can hurt you more. Find a really good massagist who knows what they are doing (there are bad ones too), or try acupuncture. Reply CEllhunt009 July 4, 2017 Well the only thing I got was a broken arm and a dislocated shoulder and I have heal over time. But Rikki I can help with some of the pain you are have FB me. Reply April Morone July 4, 2017 I understand. I have sliding discs problem of my lower back, the L5 broke, have a degradation of the Thoracic spine, and painful upper spine complicated by crushed discs of my C-Spine (neck) that send pain down my upper back, left shoulder, or arm, depending upon how I move my neck. I also have TMJ, as does my birth brother who was adopted with me into my adopted family. Reply Hteb Notserp July 4, 2017 do you sign? Reply Jake Kooken July 4, 2017 I know how that is I have tendinitis my body hurts all the time Reply Amanda Ross July 5, 2017 My wife was in a car crash a couple of years ago and has had to go to a pain clinic ever sense. Have you tried talking to your doctor to see if your insurance would pay for it? My wife's insurance pays for hers. Just a thought. Reply Spontaneous Productions July 5, 2017 I was diagnosed with a minor case of scoliosis (16 degree curve) back in 2015 but I will still get back pain if I stand or even walk for too long. I think the most I can walk for is maybe 30 minutes straight before something will start hurting. They gave me a bunch of physical therapy but I just kinda stopped going as the pain did get less frequent. I do complain a lot though so I understand Rikki lol. I do think that my doctors also wrote that I have chronic back pain (some relation to the scoliosis but a bit diffrent?) but I will have to ask about that next time I go in a few days. Reply cbowd July 5, 2017 Yeah TMJ is definitely chronic pain. I have chronic pain in a million spots from EDS + lupus but facial pain (TMJ, dental pain, migraines, etc) is some of the worst. It feels super….personal? To have pain all up in what you think and express yourself with. Plus anything near teeth is scary because it costs so much to fix and they don't heal themselves. Reply CamB99 July 5, 2017 Lol, I would be more than happy to complain about chronic pain with you, it's good to talk about it and I hope that helped you by doing so 🙂 Sorry to hear your back decided to fight you after the video, I hope you fought it back and won though 🙂 Reply fourstar July 5, 2017 Rikki, did you know that there’s been a noticeable “hiss” in the audio of your videos? Is there any way you can fix it? Reply Thomas Ranum July 6, 2017 i can relate so much Rikki. I have a disorder called nf2 that causes benign tumors on the spinal and brain nerves. constant pain. I get chemical meningitis once in a while. its so bad. no amount of narcotics can heal it. Reply lilypad July 6, 2017 Thank you for making this video. I live with chronic pain as a result of cerebral palsy and it is NOT fun. Reply Krystal Decker July 6, 2017 Research, Research, Research places to get a massage. I've been paying $50 a month since 2014 for massages. They are so good and helpful. I was in car accident and have money set aside to help pay for things like that. I wish I could see a foot specialist but that would just add to my expenses. I pay just over $200CDN for what I call rehab. Reply Anna Goldberg July 7, 2017 Anyone want to complain about chronic migraines? lol Reply Dariga Abikenova July 8, 2017 fortunately, I have no these problems but my back isn't good either. I used to swim and dance and do yoga etc. I should say that swimming is wonderful for a bad back. do you like swimming? Reply Cornelia Dottir July 10, 2017 I've had back and shoulder problems for more than 10 years (not sure when it started). when I was 15 I developed chronic shoulder pain. I had several different kinds of physical therapy but none of that worked until at some point it just faded away and stopped being chronic (though the problems under stress/pressure stayed). then May/June 2015 the chronic pain decided to start again when I was in a very stressful time of my life and have stayed with me since then, steadily getting worse and worse. currently I'm taking 2 different kinds of medicine 5 times a day to stay human. also had physical therapy for the last 3.5 months and although it helped a little, it doesn't really change much. contributors could be: scoliosis especially at my cervical spine and where it connects to the thoractic spine, constant tension in the shoulder muscles, a shoulder joint which isn't very well anchored where it should be and maybe a pinched nerve.I also have somewhat chronic, somewhat cyclic menstrual pains that are so strong that I have to take sick leave for at least a day every month. what annoys me more with my menstruation though is my heavy bleeding, which I won't be getting into in detail now. both of those will hopefully get better when I'll get the Mirena (a hormonal IUD) soon. Reply Colby Chapman July 10, 2017 I suffer from back pain, started about 10 years ago from repetitive movement at work – so yeah Repetitive Strain Injury (RSI). At that stage I had physiotherapy once a week then a fortnight, then every 3 weeks. Nowdays I get remedial massage once a month which helps not to suffer greatly but sometimes it still hurts. During winter is worse. I'm also a migraine sufferer. People don't understand how bad it gets. Reply Chronically Catholic July 10, 2017 I have chronic pain from lyme disease. I've been pretty sure for awhile that I have TMJ, 'cause I get really bad head and jaw pain, but I don't have a diagnosis for that. Thank you for coming out about your chronic pain! Reply MelissaW July 16, 2017 Yep with you there! I've had chronic pain since I was about 12 too, and I turn 26 in Nov.. I also have TMJ haha . Reply JeniferGamelli July 16, 2017 DUDE! I also have chronic pain. Mine is in my back, neck, TMJ and I have hip dysplasia. so I understand you 100%. it's not fun at all! And the only treatments you can do all cost money and not everyone has it. I do do yoga and that kinda helps. Along with meditation. Its more mental help because the pain is just always going to be there but it helps kinda take my mind off the pain if that makes since. Reply ChroniclesOfEm July 19, 2017 Totally agree I'd pick my body pain (Fibromyalgia and Arthritis) over my TMJ and face pain! Do you find one side of your jaw is worse than the other? Just in a chronic state of ouch but some ouches are worse than others and different. Jaw pain is like no other though! Reply Boby Hartono July 21, 2017 To relieve chronic pain, or extreme pain, I recommend taking Kratom, I have some friends who suffer from migraines, chronic pain in the spine, or chronic pain in the joints can be cured by consuming kratom. I have a video review of their experience using kratom to cope with chronic pain. To share your experience with you, you can contact me on 082151888889 who connect directly on facebook, massanger, whatapps, line, or Wechat. If my contacts are not connected, you can try the code +6282151888889. thanks. Reply popiejopie December 2, 2018 Have you heard of muscle armoring? There is a link between childhood trauma C-PTSD and chronic pain. Reply Lucy's Art January 3, 2019 I just found your channel and I am SO grateful to see a YouTuber raising awareness of chronic pain. I personally am disabled myself, and it wasn't until I found Molly Burke and Zach Kornfield (Try Guys) that I found fellow disabled individuals on this platform. I have Crohn's disease, and chronic pain in my joints, and for the past 9 months have had a pressure in my ears w/ difficulty hearing certain pitches. I've had chronic joint pain since I was 10, and am 21 now. I haven not received a legit diagnosis for it (they have gone back and forth between fibro, hyper mobility, and side effects of Crohn's, but no solid answers), which makes it even more frustrating because it seems invalid to many able bodied individuals. Keep up the good work of spreading the word!!! Reply Bree C February 3, 2019 I also have chronic pain. I have scoliosis and fused vertebrae which both give me back pain all over and I also get sciatica nerve pain that runs down my legs it sucks and I am sorry you have to deal with chronic pain! Hugs Reply Juniper Hill June 7, 2019 I have everything you talked about in this video and I’ve had it much longer, and actually I really would like to talk to you about it. Not because I need help or an outlet, but because I do honestly think I know some things that may help you, if you’re open to that. My daughter is around your age, and I hate to see you suffering when there may be ways to mitigate it. ☮️💜 Reply Add a Comment Cancel reply Your email address will not be published. Required fields are marked *Comment:*Name:* Email Address:* Save my name, email, and website in this browser for the next time I comment.