Interview – Dr Laura Mauring, Medical Fellow

My name is Laura Mauring and I’m the medical fellow of the ERN-EYE – What is your concrete role in the ERN-EYE network? So in the ERN-EYE network I am part of the helpdesk team with our IT specialist so we are
two, we are helping the users with the CPMS, the virtual clinic or the
clinical patient management system. So the IT specialist is more involved with
technical issues like logging on to the system and creating a new panel and I am helping the users with our ophtalmological dataset which is quite
thorough and if needed I can also approach different members individually
to to ask them to participate in a complete panel – according to their
expertise or the research that they have done. -In your opinion what is the most
important issue ERN-EYE could overcome? So of course ERN-EYE has many
technical issues that need to be overcome for example getting enough
users to the CPMS which is quite a good system, means it is a
very thorough one, and it seems to be complicated but it
really isn’t if you get used to it but the real question is how
to really kickstart the CPMS. We still have quite many users but we don’t have
that many panels as we should actually because there are many
questions in I’m sure in every Center or expertise that could be
asked for their patients but really CPMS is not necessarily used as a part
of a patient management right now what it should be actually. It should
be the last instance what you get help for your patient -What are the main
challenges for the network? So the main challenge is for the network
I think, well one of the challenges is already overcome so as I said about
virtual clinic this is already working well actually in the practice but we
have also the rare eye disease registry that needs to be created as well as the
guidelines and I see a lot of people, a lot of experts working like really
hard everyday and also the team in Strasbourg but we have still
very limited time to make this registry and to create those
guidelines and I’m afraid that the time might be too limited to be on
the schedule -And the best advances of the network? I think the best
advantages of the ERN-EYE network is that we can work together really that
the major experts of the Europe can work together and anything that we
create like the guidelines that they are created within the network are really
thought through and consensual -In your dreams what would ERN-EYE look like in ten years? So in ten years I think the CPMS
could be already a part of clinical practice really automatically and I
think at this time we should already be seeing the real cost effectiveness of
the system and what is more I think the registry of rare eye disease it would
be ready at this time and we should be used all over the Europe so we would have a really clear idea what is going on with rare eye
disease in Europe. In addition to this I think we would have many guidelines
already in ten years so we could help the doctors to make decisions for their
patients who are dealing with the rare eye diseases
-Thank you very much! -You’re welcome.

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